Monday, April 30, 2012

Reporting on our Capitol Hill visits!

Sorry it took so long for this update! We're back at Mount Holyoke and studying hard for finals. Okay, okay, so I haven't been the biggest help with writing final exam papers, but I sure am cute to look at and play with during breaks.

Our congressional visits went really well. First I picked up our packets with information packets on information full of how our Maine congresswomen can help make arthritis a national priority.

With Chris Kush and Holley Coil- receiving informational packets about HR4209 the Patients' Access to Treatments Act of 2012

HR4209 would increase access to medical treatment for people with arthritis who require high-cost medical treatments. It would limit how much insurers could charge patients for prescription medications. After all, if insurance isn't going to cover the big stuff, what's the point? This bill would help people with serious medical conditions like inflammatory arthritis, lupus, multiple sclerosis and hemophilia be able to afford live saving treatments!


We also had to get the important message to Congress that we need to fund arthritis-related research at the National Institutes of Health and the Department of Defense.

Arthritis research helps create jobs!

Did you know two-thirds of people with arthritis in the United States are younger than 65 years old? Arthritis is leading cause of disability in our country. We need research to improve and save the lives of a lot of people! Traumatic osteoarthritis is the number one reason for medical discharge from the military in people under the age of 40. Did you know we have over 300,000 children with Juvenile Arthritis in United States? We need need research NOW! Research even helps boost the economy by increasing jobs! Can I get a WOOF?


After we picked up our packets we headed to Capitol Hill for mom to tell her story about living with arthritis. And, I promise I will post all about it tomorrow! For now we need to work on our philosophy final, but I want to leave you and Congress with a warning: Holden is in da House!

Holden in Longworth House Building on Capitol Hill

That's right, folks, I work hard making sure my Mom is okay. Congress needs to make sure everyone, including people with arthritis, have access to treatment when they need it. Tune in tomorrow to find out what happened when I hit the Hill to talk about access to healthcare and making arthritis a national priority!


Night, night!

Wednesday, April 18, 2012

Another great day at the Advocacy Summit!

Yesterday was another great day at the Summit. I'd woof all about it, but my mom is pretty busy so I'll have to tell you about it later. I wish I had opposable thumbs so I could blog all by myself! Here are a few pictures from yesterday's fast paced and exciting moments.

Wow, Jonathan Capehart from The Washington Post is so smart.

I think service dog Maggie wants to be my girlfriend!

BUT wait a minute! Miss Michigan, who came to talk us about using negative experiences to do positive things, told me SHE wants to be my girlfriend! Elisabeth has Juvenile Rheumatoid Arthritis and is a great inspiration!

Today we head back to Capitol Hill to visit with Representative Chellie Pingree, 1st District of Maine. I need to tell her that people with arthritis need access to care and research, right now!


Monday, April 16, 2012

I'm at the Arthritis Foundation Advocacy Summit!

Hi everyone! Even though I haven't been blogging much lately, I wanted to tell you what I'm up to this week. Today we flew to Washington, DC, so we could join over 350 advocates from all 50 states to help advance arthritis-related legislation!

Mom got a travel award stipend to attend the summit from the Arthritis Foundation. This is our second year attending the Advocacy Summit; last year the New England Chapter of the Arthritis Foundation helped fund our trip. I thought it would be great to woof about this year's experiences at the conference and our congressional meetings.

This morning we had to wake up really really early. After I made sure we had all the important stuff (like my food, bones and raincoat) we went to the airport. When we got to the airport I took very special care of Mom because traveling is hard on her. Just incase you haven't heard, arthritis hurts! Whenever we travel we have to bring all of mom's medications and medical supplies, and there is lots of walking to do. Luckily, I am around to pick up stuff so she doesn't have to do any bending. Mom didn't bring her scooter because she didn't want to risk damaging it for such a short trip, but don't worry, we rented one for our time in DC so she can get around easily.

Holden in the airport

Our flight to DC was delayed and I was a bit miffed, but Mom was pumped and ready. A few hours later we got to DC, checked into the hotel and headed off for our photo shoot. That's right, I'm gonna be famous, and maybe mom too. Mom was professionally photographed as part of the Arthritis Foundation's "I am the face of Arthritis" campaign. When the photographer saw my handsome self, he knew he would need to have my beautiful face in those photos too. As Mom's helper, I am intimately familar with Arthritis. I'm the canine face of arthritis assistance!

After that we finished registering. We were feeling like pretty proud advocates by then, do we look it?

Today has been jam packed, and I'm tuckered out. We heard about research on autoimmune arthritis from Dr. O'Shea a researcher at NIH, and after that we attended a great interactive session called Congressional Insight. Mom had a great time learning more about the legislative process while I got some much needed ZZZzzz's. I needed to rest up because helping my mom with the challenges arthritis presents is very important work!

 

That's me snoozing! I missed a great session with the wonderful Kirstin Butterfield, Director of Grassroots Advocacy at the American Academy of Physician Assistants. Mom said she had lots of fun and better understands how politicians make the decisions they do. The BEST part of all? Kirstin is a Mount Holyoke alum!

 

Wow, I'm glad I woke up in time to have a photo op with two Mount Holyoke women trying to make the world a better place!

Time for more ZZZ's. See you in the morning! Make sure to check back for more updates from me about the Advocacy Summit!

 

Woofs & Wags,

Service Dog Holden

 

 

 

 

 

Monday, April 9, 2012

New Harness, New Coat

I've been battling a merry myriad of health issues lately that haven't allowed me to blog as much as I'd like. I have been sleeping as much as 18 hours some days, making it nearly impossible to do my coursework, let alone blog.

I wanted to post a review of two recent equipment additions for Holden, though. Back in July I had a new mobility harness custom made for Holden by Bold Lead Designs. I was interning in DC this summer, and I got a lot of comments on the Metro about Holden's new BLD harness. The high quality is readily evident to onlookers. I previously worked Holden in a Circle-E Assistance Dog Harness and before that I had a harness maker create a copy of a balance/momentum harness I was familiar with. All three harnesses have their benefits and disadvantages, but overall I have been happiest with the Bold Lead Designs harness.



HANDLE: I had my harness made with an ergonomic grip and it has been great since I have many wrist issues due to my arthritis and EDS. Like my old, old harness, it seems to be padded with tennis tape. This is much more comfortable that the leather padding on the Circle E harness. Plus, should I need to it looks like I can just strip the old gripping and put new tennis tape one. I already have some nicks and wears, so I will likely replace the grip in the next few months The handle has reflective tape on both sides and is a nice touch for at night. If you tend to walk at night frequently though you will want to ask about options for adding additional reflective strips.

The handle can collapse against the dog's back to make it easier to get under tables or chairs when out it public. This is a nice touch, and the mechanism used is much better than the system on my Circle E harness. One issue I have had is loosing the left knob repeatedly. I've lost 5 knobs since July. As soon as classes are over I might send the harness back to see if a reason can be detected. I haven't heard about this issue from with of my two friends who also have the BLD harness for their service dogs. Grade B




CHEST STRAP: As you can see the chest strap goes directly across the chest. This is fine for balance work, but suspect for momentum work. The harness can be ordered with an additional pull strap for momentum assistance, but the harness design itself doesn't distribute the weight optimally as it would if it used a Y strap design at the chest. Holden's holistic vet that does his acupuncture felt that the momentum feature on this design could be problematic. One of the things she did was video us walking with Holden's old momentum harness with a Y strap and then in the Bold Lead Designs Harness, the difference in how Holden moved was easily noticed. The chest strap on the BLD changes his gait because it restricts his front legs a bit when pulling into the harness. If you think about dogs that pull sleds or participate in skijoring, this makes sense. Obviously, the stride of a mobility dog at a walk is less impacted than a sled dog straining against a harness. I won't really use the pull strap too often, because I'm not comfortable with how it effects his movements.

This is really unfortunate since momentum assistance is something I need when I am walking instead of use my scooter or wheelchair. If I know that I will need momentum assistance, I sometimes put his old harness (with a Y chest strap) on him that day. For the balance aspect of the harness the chest strap isn't a problem, but if you are purchasing a harness more for momentum than balance you should take this into consideration. The harness maker at Bold Leads is says she likes to hear feedback for revisions and if I could afford to drop another 400usd on a harness right now, I would ask her what could be done to alter the chest strap into a shaped Y strap. I suspect a Y strap would make the balance handle less stable, and may be the reason this design was avoided. However, for people who need momentum assistance more often than balance work, it might be a worthy trade off-if it's doable option. If you only need balance assistance this is a non-issue. Grade: C+ (if you need momentum); A- (if you don't)

GIRTH: Both girth straps are adjustable on one side and have quick release buckles on the other. Once the harness is fitted properly you only need to deal with the quick release buckles! This is a wonderful feature that my often inflamed fingers and hands really appreciate. This feature makes is so easy to take on and off your dog. The second strap doesn't seem to do much as Holden has a shallow chest, but I imagine on shepherd this would be a necessary feature. Two clicks, on and off! Grade: B+

OVERALL FIT: Save for my qualms regarding the chest strap, the fit of this harness exceeds anything else currently on the market for balance and momentum assistance dogs. The harness is well lined with sheepskin and like a horse's saddle it sits behind (not on TOP!) your dog's shoulders (withers) allowing free movement. I've seen too many harnesses that sit on top of the dogs shoulder blades, which can really hurt or otherwise injure a dog when a harness is used for balance or momentum. Grade: A

Holden looking quite distinguished in his new coat.



OVERALL CONSTRUCTION & APPEARANCE: This is a high quality item made with attention to detail. The harness is made from high quality black leather and white stitching. I originally wanted the harness made in a brown or cordovan leather, but this was not advisable. I was told as the leather was not as high quality as the black. I actually really dislike black leather, even if it's beautiful black leather. I continue to hope a dark brown harness will be available for Holden's sucessor. The harness comes standard with 3 small D-rings. An optional small pouch that fits the outside D-rings can be ordered for an additional cost. (I did not get the pouch.) In addition to the pouch, BLD has a variety of patches and banners available to fit the harness. Grade: A


Things I would change if I ordered a new BLD: As stated earlier, I'd like to see a Y shaped chest strap instead of the current across the chest, strap. I'd also would opt for only one D-ring, significantly larger and reinforced, so I would not have to remove the entire harness when I want Holden to wear his car restraint/seatbelt. Not sure if this could be an option, but it would be nice. H rides on the backseat instead of the way back and even if the working load of the harness could not match his seatbelt harness it might help prevent him from going through the windshield in an accident.

And last but not least, the coat!


Holden in his new raincoat.


I ordered this custom made raincoat from Cozy Horse specially for my advocacy trip to DC next week. Last year at the advocacy summit it rained a bit. Well, let me tell you, there is nothing more nerve racking than the thought of showing up from congressional meetings with a wet Golden Retriever! (In fact, in preparation for this year's trip Mr. H is getting a very short trim to his feathers and not-as-short trim to his belly and chest!)  I lucked out last year and it never ended up raining during the time we traveled around Capitol Hill more than a short lived light mist. I worried the entire trip about it rain, H's long hair, and his insufficient raincoat. When I got the news that I would be receiving a full stipend from the national office to this year's AF Summit, I took some of the money I'd started saving for an iPAD and began the hunt for a good raincoat. Enter Cozy Horse, a colorado company making custom blankets and coats for dogs and horses.

Holden in his new raincoat.


This raincoat has been made to accommodate the BLD harness. It hasn't rained yet, so I am unsure how effective it will be with open areas. The large cutouts for the BLD concern me, as the raincoat I saw on their FB page didn't have all these large cut outs, just a flap with some room for the handle. I spoke with the maker about this and was told that this is the way it must be made for the BLD harness. I still don't really understand why the flap part was made so narrowly when it could have been made to provide better coverage, especially considering the price. An additional 2 inches on each side would have made for a better raincoat IMHO. If this turns out huge issue I will need to figure out a way to widen the flap myself, I guess. This is definitely a high-quality item and it fits Holden like a glove. I opted for reflective piping, and with H being a Golden Retriever, I ordered a removable belly flap as a muddy tummy is a regular rainy day occurrence around here.

Very large cut out for harness handle.

For the past seven years I have searched for an effective raincoat that can be worn a balance assist harness and can be put on, and taken off, without having to remove the balance harness. (I love our Ruffwear raincoat too, but the size that fits his chest means the coat stops short a couple inches short of his tail AND I have to put H's harness OVER the coat, which means I have to remove the harness if I want to take the raincoat off and the leather gets soaking wet.) Let's hope this one is it! The quality is excellent and should last for use with my next dog, too.

Tuesday, February 14, 2012

So much to report

It's been a really long time since I've blogged because I have been very busy taking care of my mom. As many of you know, mom has been dealing with a flare in her condition, new medical issues and a new restricted diet. I have been busy learning some new tasks and trying to keep mom's sprits high.

I'm very happy to report we have moved again. This time we moved to an on-campus apartment with a friend, and the apartment has a ensuite bathroom and a kitchen. This has been a great change for us! I have lots more room now and am much more relaxed. After all, who wouldn't be relaxed with an apartment to spread my toys all over?

Another great thing about our new living space is that mom can store things like her scooter, wheelchair and my food in the apartment, but not crowding us in her room. I love that we have a bathroom so I can go in and check on mom anytime she is is there, just incase she needs help. If she needs help I can always bark for help or get her roommate. Luckily, that hasn't happened as yet.

We are really happy in our new space.  I think it will also help with mom avoiding catching every cold that runs through the dorms. I also love that I can have my bed in the hallway and know that I'm protecting mom and her friend. I alternate sleeping in the hall outside mom's door and in her room. Lately she is being greedy and kicking me off the bed when I try and stretch out--if only she could curl up small. When mom is sick I like to stay close, but if she is doing okay, I often enjoy getting some shuteye just outside the bedroom door.

I'm going to try really hard to blog more often. I promise! We have some pretty exciting adventures coming up that I want to share with you. But for now I have work to do.

Woofs & Wags,

Holden


Here's a quick video of me getting the door at our new place!


video